So for the past month or so we’ve been trying to figure out where this swelling is coming from. I went to a cardiologist and after doing the ECHO she saw that I had a little thickening on my heart and apparently that only shows up when you have hypertension. My BP is always on the low/healthy side so she attributed it to me being fat. My heart is fine other wise and the thickening can be easily reversed once I get back in the gym. She was also worried about my cholesterol and vitamin d so we did those tests. My cholesterol levels are all well above average. I just need to eat more good cholesterol (once I figure out what that is), and I have a vitamin D deficiency (I mean duh, welcome to Crohns world). She then gave me a list of foods to eat, full of the foods I purposefully avoid and told me to exercise. When I told her that I was eating a vegan diet before this flare and that I normally work out intensely about 5 times a week, her jaw kind of dropped. She then told me to make a list of the foods I can eat (Duh lady this is all I do), because, and I quote “you’re going to be on steroids for the rest of your life and you don’t want to be 400 pounds”. She must not know how this Crohn’s thing works? She cares tho and I can appreciate that.
After I left her, I went to the vascular surgeon so he can get a look. Long story short, it’s not lymphedema and both doctors agreed that it was due to Remicade and that I have to take a water pill and elevate my feet. So now I’m back on Remicade. HOWEVER, when I went to treatment yesterday, I couldn’t get it because I’ve had this cough for like 3 weeks and they thought it may be pneumonia because I have pain at the top of my rib cage. Turns out it’s not pneumonia but something we don’t know. Soooooo…yea lol. Just an update for you. Guys, keep track of your symptoms, don’t be afraid to ask questions, and always speak up.