I’m not different because I’m sick. I’m different because I’m a superhero that’s freaking awesome.
Medical Update 3/2014: IM SOOOO OVER IBD
I’m still waiting on one more test but eh, it’s not that important. Let’s make this snappy shall we?
TB Test Followup: the disease is inactive which is awesome. What sucks is I have to be on this medicine called INH for 6-9 months to pretty much kill what’s there. It’s also taken with a B-6 vitamin so I can absorb the meds better. I have to get my liver levels checked every 2 weeks (hopefully soon to be once a month). I also have to be on this medicine for at least a month before I can start any Crohn’s treatment because since the CD meds suppress your immune system, things could get ugly.
MR Entorography (sp?) results: my small bowel is inflamed and that may explain the joint and stomach pain.
Colonoscopy and Endoscopy results: I have ulcers on my surgery incision. I have no idea how that happened.
Labs: my iron and vitamin D are low so I have to take Vitron C everyday which is iron with vitamin c to help you absorb the iron better. I also have to take and a vitamin D pill for 8 weeks.
Treatment: no remicade right now( yessss), however we’re doing Prednisone to see if that helps with the joints and inflammation. If not, they’ll up the dose. It’s not that great that I’m on it along with the TB medicine but they’re monitoring me so that’s fun. It’s only been a week and I’m wired throughout the night, still not feeling that great, I’m bloated as hell, and I’m hungry a lot. Let’s hope I only have to be on this for a month.
That’s pretty much it. Once my next test comes, I’ll let you know how it goes.
Better days guys
Some of your responses to my post about The Fault in Our Stars.
halfheartedheroine made a good point about the use of visibility in the book and how Gus can pretty much hide what’s going on with him, whereas Hazel can’t. -> http://halfheartedheroine.tumblr.com/post/78282619341/the-fault-in-our-stars-and-crohns-disease
c0gnitive-diss0nance also mentioned how Crohn’s isn’t always viewed as “serious” because it’s not cancer, even though there are parallels. -> http://c0gnitive-diss0nance.tumblr.com/post/78342560794/the-fault-in-our-stars-and-crohns-disease
For me, I fell right into a lot of the characters. I don’t have cancer and pray I never will, I do however know what it’s like to be “sick”. A lot of the feelings that Hazel, Gus, and the kids in group have, are pretty similar to what many of us feel and I think that even if you don’t have a terminal illness, it’s pretty much universal. No one wants to grow up this way or to feel like this. No one wants to be looked at differently or considered less than because of something we can’t really control.
There are a few themes in this book that can be taken away and applied or related to our lives and I’d recommend this book to everyone. Especially those dealing with a chronic illness and wanting something to relate to.
Great idea from jessthecrohnie My list Helping people that are going through similar things Being able to still do a lot of the things I love Educating people Eating (sometimes) some of my favorite junk foods b/c it’s what helps lol Waking up and remembering that life is worth living even with a chronic illness
I’m giving y’all the right to get mad at me because of my lack of posting. I really am sorry.
Now that the air is cleared, I want to tell you my idea. We all know that living with a chronic illness(es) is hard, right? So I propose that we all make a list of things that make the sick life worth…
The Fault In Our Stars (and Crohn’s Disease)
A few months ago I fell in love with this book just like a lot of other people and I thought it’d be something cool to share here.
I won’t get into what the book is about too much because you have to read it for yourself. What I will say, is that as a Crohnie, it was good to read a book that dealt with similar stuff that we go throw EVEN THOUGH, the main characters have cancer. We don’t have cancer but we do have a chronic illness that takes us in all kinds of directions and I wanted to see if anyone else out there has read it and what you thought about it. Did you relate to it? Did it help you? Let’s talk. Leave a comment below and if you haven’t read it, pick up and enjoy!
Q:Sam is in The Only Way is Essex, a structured reality show (sort of like Jersey Shore) which is really popular amongst young people. She was in Celebrity Big Brother and got a lot of coverage because she kept having to leave the house due to a "mystery illness" and now I think there's a bit of interest now the "mystery" has been solved.
Ahhh ok. Thanks for the information.
I don’t know anything about Samantha Faiers except that she’s pretty famous in the UK and was just diagnosed with Crohns Disease, BUT, from what it looks like, she’s getting the word out about the disease and that’s awesome. UK Crohnies, fill me in on who she is if you can. I’d love to support her work if I’m able to.