Q:Have you ever gone to camp oasis or are a leader there? I was just wondering because I'm nervous about going this summer and I wanted some advice. Thankyou for the blog, it really helps to know there are people going through the same things as me.
No, I haven’t :-/. I really want to go or become a leader or something tho. From what I’ve heard about it it’s pretty fun so I hope you enjoy yourself. If I had any advice to give you, it’d be to take your head out of it a little and let things happen as you get there. You’ll be around a lot of people just like you so keep that in mind and remember, HAVE FUN! I’m glad the blog helps you out too :).
Q:My face gets red and hot but the body chills no fever does anyone else with chrons disease suffer from that?
I’ve never experienced that per say but I do get chills. Anyone else have this happen to them?
Q:Early signs of chrons disease?
Crohn’s is a pretty hard thing to pinpoint but some common things to look out for are:
Painful and frequent diarrhea (may be bloody)
Severe abdominal pain
As with anything medically related, please go to a gastro doctor, especially one that specializes in irritable bowel disease.
Having a Chronic Illness…
is like being on a roller coaster minus the fun. if you’re afraid of heights or hate roller coasters in general, then you’re just really in for it.
So today I went in for just a physical..yesterday was my GI visit so today should have just been basic stuff and so on. So this doctor started asking me questions about my colitis and it went something like this:
"So you have colitis…um, so you poop a lot?"
"It must suck having to be…
They just don’t get it.
When my doctor said I’d only gain “a little bit of weight” on Prednisone
IBD, Dorms, and Roommates: Resources
Ok so for some of you the school year is ending and you’re either going into college or ending another year. I wanted to do this post because I know a lot of you are either sharing a dorm or living in some kind of shared living space.
As a Crohnie, or just anyone with IBD, there are things that we have to deal with that are pretty private and we need our own space to deal with all of those things. Having your own dorm or just your own bathroom can really help. Below is a sample appeal letter provided by the CCFA that you would present to your colleges housing department or Dean of students. This letter should be written and signed by your doctor and should explain your condition and why you would need to have your own space. This should be turned in as soon as possible so that you are able to get everything taken care of before things get crazy. In the event that these accommodations can’t be made, I’m also providing a few articles by the awesome folks at Crohns and Me. I hope these few links will be of some help to you. As always…
CCFA Sample Appeal Letter
Crohn’s and Me: Sharing A Dorm or Apartment
Crohn’s and Me: Living Away from Home
Question: Have any of you gone to see a rheumatologist?
If so, how was it and what was the verdict? I have to see one soon because of joint pain and I wanted to get a few perspectives from IBDers, as well as to see just how common visiting one is in the community.
A picture book of what it feels like to have Crohn’s Disease, told from the perspective of Tommy Garden. You can order a digital (PDF) or hard copy of the book here: http://bit.ly/1qHvo3w and I have to say, it’s definitely something worth looking at. You can also follow Tommy on Twitter @Tgarden82. Check it out and share with your friends and family. It’s a conversation starter and I hope it moves you as much as it’s moved me.